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The instant New York Times bestseller! A comforting and informative guide that demystifies our end-of-life journey, from the compassionate expert known as @hospicenursejulie What if we didn’t consider death the worst possible outcome? What if we discussed it honestly, embraced hospice care, and prepared for the end of our lives with hope and acceptance? In this compassionate and knowledgeable guide, TikTok star Julie McFadden—known online as “Hospice Nurse Julie”—shares the valuable lessons she’s learned in her fifteen years as an RN in the ICU and in hospice. Expertly interweaving emotional insight and practical advice, Nothing to Fear demystifies end-of-life care for both patients and caregivers, covering topics including:
the biological details of dying
which medical interventions help and which only make things worse
the otherworldly beauty of deathbed phenomena
financial and logistical preparations for death
facts and myths about hospice care
the most important conversations to have before you die
the grieving process, before and after death
Sure to be a go-to resource for years to come, McFadden’s first book proves a better death goes hand in hand with a better life.
The instant New York Times bestseller! A comforting and informative guide that demystifies our end-of-life journey, from the compassionate expert known as @hospicenursejulie What if we didn’t consider death the worst possible outcome? What if we discussed it honestly, embraced hospice care, and prepared for the end of our lives with hope and acceptance? In this compassionate and knowledgeable guide, TikTok star Julie McFadden—known online as “Hospice Nurse Julie”—shares the valuable lessons she’s learned in her fifteen years as an RN in the ICU and in hospice. Expertly interweaving emotional insight and practical advice, Nothing to Fear demystifies end-of-life care for both patients and caregivers, covering topics including:
the biological details of dying
which medical interventions help and which only make things worse
the otherworldly beauty of deathbed phenomena
financial and logistical preparations for death
facts and myths about hospice care
the most important conversations to have before you die
the grieving process, before and after death
Sure to be a go-to resource for years to come, McFadden’s first book proves a better death goes hand in hand with a better life.
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En raison de restrictions imposées par l'éditeur, la bibliothèque n'est pas en mesure d'acheter des exemplaires supplémentaires de ce titre et nous vous présentons toutes nos excuses si la liste d'attente est longue. N'oubliez pas de regarder s'il existe d'autres exemplaires, car d'autres éditions sont peut-être disponibles.
Extraits-
From the cover
Before I became a hospice nurse, I worked in the intensive care unit (ICU). In the ICU, doctors and nurses are doing everything possible to keep people alive, and their incredible work saves thousands of lives every year. But we rarely discuss the end of life until it's too late.
People often ask me why I decided to become a hospice nurse. This story is why. I had an ICU patient named Scott who had just had major surgery that was meant to help his advanced-stage pancreatic cancer. I had seen many people get surgeries like Scott's to help extend their lives, and it often worked. In the best cases, successful surgery can add years to a patient's prognosis.
In Scott's case, things went well at first, but after five days, he developed a bilateral pulmonary embolism, which is a blood clot that goes into the lungs and stops blood flow. The only reason he didn't die from this immediately was that he was already in the hospital. Because of this incident, he came back to the ICU.
Scott was intubated, which means he was hooked up to a machine to help him breathe. As time went on, he would seem to be getting better and even could walk around on his own, but inevitably something bad would happen again. He would be doing really well and then get a blood infection or pneumonia. We just could not get him better.
For months, Scott was basically in and out of consciousness. He was on medication to keep his blood pressure normal, and because of the high doses of these meds, his toes turned black. This is called necrosis, and it means the tissue is literally dying. So even if Scott recovered enough to leave the ICU, he would need to have his toes amputated.
Here's the thing: in the ICU, it's all risk versus benefit. We were trying to keep his vitals up no matter what, and sometimes that meant sacrificing comfort and, yes, toes. In the ICU, you have a job to do, and that job is to keep a patient alive at all costs.
As nurses, we were just doing our job. We stayed focused on the numbers that showed how well his kidneys were functioning, how well his liver was functioning, how well his lungs were functioning. We watched these numbers to see which were trending up and which were trending down.
We focused on these minuscule things and reported them to Scott's family, but they had no idea what we were talking about. We would smile and tell them the "creatinine numbers" looked good, but we knew that meant only his kidneys were getting better. However, this information would lead Scott's family to think that eventually everything was going to be better and maybe he would go home one day. But he was still going to die from the cancer, and that wasn't going to change, regardless of how healthy his kidneys became.
This is what we were taught to do in the ICU, and I had become used to situations like this. Our medical team would focus on treating the person, but we were missing the forest for the trees. For a long time, I didn't give this much thought-but watching Scott, I started to think that maybe we had blinders on.
Scott was in the ICU for months. I had developed a good rapport with Scott's family. His wife was always by his side, and she was often anxious and worried. I cared deeply about him and his family. I wanted to speak up, but I was afraid. It was unheard of to have end-of-life discussions with ICU patients and their families. After all, we were supposed to be trying to get them better. But after seeing how much families were suffering, I became convinced we were doing them a disservice. We weren't being honest with them about their loved ones.
One day I finally thought, "Enough is enough." I had seen this pattern in too many...
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